REMEMBER - you are a CUSTOMER OF THE NHS so have your SAY IN YOUR TREATMENT! The law should help to PROTECT YOU. Yes it can FEEL SCARY but the more you know, the better it should be. So TAKE CONTROL ! DO ⬇️ REFER to the below throughout (letters, meetings, conversations ..). The list is not exhaustive however below are some useful starting points: • NHS Constitution (GOV) - LINK (https://www.gov.uk/government/publications/the-nhs-constitution-for-england) • Patient Rights (Age UK) - LINK (https://www.ageuk.org.uk/information-advice/health-wellbeing/health-services/healthcare-rights/) • Equality Act 2010 (GOV) - LINK (https://www.gov.uk/guidance/equality-act-2010-guidance) • Martha's Rule (NHS) - LINK (https://www.england.nhs.uk/patient-safety/marthas-rule/) • Mental Capacity Act 2005 (Mind) - LINK (https://www.mind.org.uk/information-support/legal-rights/mental-capacity-act-2005/overview/) • Human Right's Act 1998 (Citizen's Advice) - LINK (https://www.citizensadvice.org.uk/law-and-courts/civil-rights/human-rights/the-human-rights-act-1998/) • Disability Law Service (DLS) - LINK (https://dls.org.uk/) • Mental Health Act 1983 (NHS) - LINK (https://www.nhs.uk/mental-health/social-care-and-your-rights/mental-health-and-the-law/mental-health-act-easy-read/) • Care Act (CQC) - LINK (https://www.cqc.org.uk/guidance-providers/adult-social-care/care-act-easements-it) DO ⬇️ • ASK to read your medical notes / observations while you are there. • Check any process for Deprivation of Liberty Safeguard (DoLS) - LINK (https://www.cqc.org.uk/publications/major-report/state-care/2022-2023/dols) DoLs support safety for people in care homes and hospitals while not taking away their rights.

Intensive Care is more controlled area for CRITICAL CARE and could include: • 1-2-1 nursing. • Life support and life enabling equipment and decision making. • Restricted visiting. DO ⬇️ NOTE: • Ward number, name and telephone number. • Bed / Bay number. • Visiting Hours / handover hours. • Parking / Access. • Quiet / Prayer Rooms. DO ⬇️ Take FAMILIAR THINGS: • Family / friend pictures. • Familiar sensory items - smells / touch / sounds. • Toys / games. • Music • Books / Magazines. DO ⬇️ • Check if you are eligible for carer entitlement to free parking. • Ask to read your medical notes and observations. • Limit visitors or do a timetable.

Intensive Care is usually 1-2-1 CARE including: • Consultant / Nurse • Colour coded by uniforms (NHS) - LINK (https://www.northamptongeneral.nhs.uk/Patients-and-Visitors/For-inpatients/Who's-who-%E2%80%93-what-our-different-uniforms-mean.aspx) Other Staff could include: • Surgeon • Dietician • Speech and Language Therapist (SALT) • Physiotherapist, Occupational Health Therapist for mobility / rehabilitation • Pharmacist • Chaplain DO ⬇️ • ASK anything - they are people to so don't be scared to SPEAK UP AND ASK

There iare usually more CONTROLLED RESTRICTED BAYS for one patient ICU CONDITIONS • NHS Intensive Care Conditions - L(https://www.nhs.uk/conditions/intensive-care/)INK (https://www.nhs.uk/conditions/intensive-care/) • ICUSTEPS - LINK (https://icusteps.org/information/guide-to-intensive-care) (https://icusteps.org/information/guide-to-intensive-care) EQUIPMENT Staff may take your 'observations with monitors' to check: • Blood Pressure • Pulse • Respiratory • Oxygen HOW TO READ A MONITOR (WIKI) - LINK (https://www.wikihow.com/Read-a-Hospital-Monitor) Equipment around you may include: • Life Support equipment • Tracheostomy • Suction equipment • Ventilator machine • Intravenous drip TESTS Staff may take tests for more in-depth examinations • Bloods (NHS) - LINK (https://www.nhs.uk/conditions/blood-tests/) + LINK(https://www.nhsinform.scot/tests-and-treatments/blood-tests/common-blood-tests) • Medical Images X-rays, CT Scan, MRI (GOV) - LINK (https://www.gov.uk/government/publications/medical-imaging-what-you-need-to-know/medical-imaging-what-you-need-to-know--2) • ECG (British Heart Foundation) - LINK (https://www.bhf.org.uk/informationsupport/tests/ecg) • Glasgow Coma Scale (GCS) - LINK (https://www.glasgowcomascale.org/) • Patient Info - L(https://www.nhsinform.scot/tests-and-treatments/blood-tests/common-blood-tests)INK(https://patient.info/about-tests-and-investigations)

DO ⬇️ ASK EVERYTHING YOU NEED TO, REMEMBER YOU ARE THE CUSTOMER AND HAVE A RIGHT TO KNOW EVERYTHING WHO ? • is the doctor in charge of me / my main contact during my stay in ICU? WHAT ? • is wrong with me? • will happen next? • is the equipment for? • could go wrong with me? • are my treatment options? WHY ? • am I being observed or admitted? HOW ? • is pain controlled? • long is recovery? WHEN ? • will things happen? • will I be called if anything changes? WHERE ? • is there a private area to talk? • is there any place nearby to stay at night? • is there any place to wait besides the waiting room? • are there facilities for food and drink?